Done for a couple of presentations around The Holocaust in 1,000 Years.
(done “after” my surgery)
The Living & The Dead ©Marton 2009
LifeAfter
A point of no return?
Alain Resnais, the master of time in cinema, wove some formidable strands with Jean Gruault’s screenplay and Hans Werner Henze’s music.
On my 10 Best Films list “before,” and now even more so.
and its music by Hans Werner Henze:
Illness, sickness, being “out” has
NO REDEEMING VALUE.
Trying to “be positive” about it
(to hide one’s fear?)
represents an indoctrination like any other.
– life is the way it is –
While one does know certain things because one has been punched by life – often by just plain stupidity – that knowledge amounts to being able to say:
“one can be punched hard by life or by stupidity.”
Christopher Hitchens’s take on the famous saying goes this way:
I speak of this elsewhere, but it was clear from the ICU on that what was considered normal was a complete aberration. Being surrounded in rehab by many brain surgery survivors who could only mutter vague sounds to express themselves, regular activities like speaking, holding a pen or defecating have to be considered miracles, amazing victories!
Nothing can be taken for granted.
We are born disabled, and most of our lives are probably disabled in one way or another (but deny it)… and we will most likely die disabled.
Another one of those “beams in the eye” – so prevalent it is one more omnipresent blind spot.
With life having slowed down in a major way – did I know whether I would EVER leave ICU, “eternity” appears like a daily occurrence.
A particular bird’s-eye view cannot be avoided – all of the tohu-bohu of daily activity, whether it is the curtains that are drawn across the way in the ICU (I assume from the movement of people that someone has just died), or on the other hand, their busyness, people can easily be summarized in this way:
- The Dead
- The Living
- The Kind
- The Unkind
People Simplified ©Marton 2012
d
… the good and the bad.
You are in charge, even if you are dying.
(to be remembered, if possible, till the end)
–
Samuel Beckett
” Ever tried. Ever failed. No matter. Try again. Fail again. Fail better.”
“I can’t go on, I will go on.”
–
Don Miguel
“Don’t Take Anything Personally. Nothing others do is because of you. What others say and do is a projection of their own reality, their own dream.
When you are immune to the opinions and actions of others, you won’t be the victim of needless suffering.”
–
As Ajahn Sumedho calls one of his books:
Don’t Take Your Life Personally
To regain my footing – I still have major fatigue/balance issues – (following my mother who lived till 93 thanks to the good care of my brother), AFTER I have listened and followed most official medical advice… I now
TRUST IN VEGETABLE JUICES!
If I can gather them: ginger, garlic, parsley, cucumber, beets, spinach, tomatoes, carrots, celery, cabbage, asparagus.
(a few samples from an on-going series)
The Healing Arts Series © Pier Marton 2011
The Healing Arts Series © Pier Marton 2011
The Healing Arts Series © Pier Marton 2011
The Healing Arts Series © Pier Marton 2011
The Healing Arts Series © Pier Marton 2011After my brain hemorrhage, I looked for websites to guide me along. Short of that rare meeting when I could compare notes with another survivor, there was no place on the web to consult. So… Brain Bleed!
To summarize, I went from “hell” (how inadequate a word!) through “wild rides” to a present and constant knowledge of what I call “the arrogance of normalcy” – in other words like with many other disabilities, I am not “normal” but most people are unaware of that.
So while I am neither a doctor nor a health professional (PLEASE do consult them if you are looking for more than just support – this blog nor its participants are liable for any misinformation), I am starting this site because “someone needs to do this.” This site may re-appear in a different format at a later point.
As the creator of “Brain Bleed” I reserve the right to edit or block any contribution/contributor that I deem not to be contributing to a supportive environment. Disagreement is allowed but, please no flaming, rants or insults. Yes there is uneven care out there but this is not the place to bad-mouth any medical staff.
Below is a mind map I created that may guide me along as I create, time permitting, the various categories to help us all navigate better this rough terrain.
Brain Bleed/Hemorrhage Mind Map ©Marton 2011
Please feel free to comment so I can tweak the mind-map to reflect the community of brain bleed survivors.