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OVERCONFIDENCE!

I am responsible…
All accidents feel very stupid: if only I had done this, gone another way, etc…

In my case, I was possibly too joyous – something was excessive – I decided to take a speed bump without slowing down, why not? This was a glorious day… (cf. Fall Season post).

The key issue here is that I am responsible for being at the bottom of this hole – how it feels (bad and depressing, if I am using words – not a necessity at all!) – and I am responsible for getting out.

I will be “there” for quite some time.

Fortunately, I listen to myself (as that other dumb cliché says!): sleep a lot, walk outdoors every day, and eat and drink (water) so as to regain the great weight I have lost.
Even though I write all of this down, there is absolutely nothing to say!
BUT
I remember Jean Améry (Hans Meyer) pondering what the intellect(ual) can bring to torture (cf. At the Mind’s Limits).
Keep writing, and maybe like in a good conversation, you will discover something you  had no idea…

I remain in silence as long as possible. Silence has a great many layers…
[I dread noise – why do planes fly at 10:30 p.m. and 5:30 a.m.?]

I want “reality:”
words that don’t feel like they come out of some ready-made wishes, and clichés.
Music that is sparse and knows its limits… but what is reality, that elusive concept (cf. my School of No Media)?

The new stats I am watching…

Almost three weeks later, I am home!
Being home, means one’s effort to be can BE that much more REAL than in a setting where’s one future is totally dependent on a bunch of strangers, who all play their part. “Public self” has a great many limitations.

Facial hair, because for quite some time, there were other concerns.

The good
– I get my dreams back (I had not realized I had not dreamed in the hospital). It is like a friendly blanket, another “me” meeting me, regardless of the dreams. Officially I am told: REM sleep is back.
– I am like a sponge with silence: give me more!
– I sleep a lot, more than eight hours per night.
The hard
– My previous brain-bleed (cf. this site) is of no use. There is no comparison. I am even more so on my own, and more specifically: I have no idea which way is up. There is no path, no ledge onto which I could ponder anything.
The concept of healing or of any kind of roadmap is unavailable. I am there,where there is no “there.”


Making it home means one has done enough “genuflections” (passing the tests to demonstrate one is functional enough). I remember in rehab a four hour psychological evaluation starting at 8:30 a.m. where one element included the need to recall more than once a list of a great many disparate objects, and keep a friendly attitude. Towards the end of that morning, without any break, I asked if I could play on my phone some background music (Satie) to soften the hardship of these non-stop exercises. I was allowed to do so.


If one’s relationship with oneself is barely alive:
To speak (= to have to conjugate verbs) means affirming one’s ”I,” one’s identity.
When someone else wants any kind of attention – could be something as trivial as a “how are you?” – it is impossible to respond properly.  There is nobody home, nobody who could  properly answer.
If one is unpleasant to the outside world, it is because one has not yet established some kind of self.
It is impossible to speak without a well established subject, That’s why one shouts (as a way to say most indirectly: “I am not ready to engage in a conversation of selves!”).


And loud sounds and noise make themselves known as disturbances, absolutely invasive, and preventing any link to self.
Is that kind of hypersensitivity a phenomenon I should expect? Like a great many other questions, I am in the dark.

SURPRISE: “here is your book to take home” 271 pages…

Hmm… I have brain injury?! No doctor, no nurse, no one has brought up the subject, but “here is a book to read as we send you home.” – the fact that I have not read any book for quite a while seems irrelevant to them.
Unfortunately, this is representative of the way “I was handled.” I had to gather information, right and left about my condition.
Notwithstanding the actual care (surgery, wound care…)  and “vitals checking,” it has felt like I have been on my own.

I spend two and a half weeks in a hospital setting…
It is “hell” – there are so many kinds.
This one is made of:
– I am moved from one room to another but… both rooms, both men/neighbors are screaming day and night, and moaning. I cannot believe I am supposed to heal in that environment. I slowly learn that  I am in the “trauma unit,”  where trauma is king.
– I speak to three “case-managers” – someone should be supervising my healing.  All three tell me they will get back to me, but they don’t.
– By the time I leave, I have managed to communicate what I would consider to be eatable by me.
The kind of depersonalized bland cafeteria food I was given feels like being fed by a conveyor belt in a stable. I cannot imagine any kind of senior housing or nursing home food… And the lack of actual privacy.

Dinner = white bread with processed cheddar cheese.

– The morning “doctors rounds” end up being a predictable daily disappointment: I never get a sense of an overview, nor of what is a stake. They do show up, doctor and residents, but before I can have any concrete conversation,  they “have to run elsewhere.”
Every nurse seems to come from a different country – one small way to escape and to find stimulation where I can.

Picture without the screams & moaning & bed-alarm by the next bed…

P.S.:  A friend told me that this reflects the state of the health system in the US. A doctor I spoke with later confirmed that.
NOT to take it personally! [reminds me of Ajahn Sumedho‘s important book: Don’t Take Your Life Personally.]


ADDENDUM!
Just learned much later, that I was in a geriatric trauma unit, nobody told me at the time… but that explains the two different rooms with two screaming neighbors. They should have done some kind of assessment, and possibly put those two together!

Yes indeed, and of course… I did not see it coming.
On a beautiful fall day – upon getting on my bicycle, I remember clearly having that  “sense of well-being” –  not only did I feel fit on my bike – I had biked and swum earlier – the temperature and sunny afternoon seemed to say “take a bite of life!”
I vaguely remember some speed-bumps that I was going to take in a fun way – without slowing down – after all, I felt good, the terrain was flat and there was no traffic.
ALL ACCIDENTS ARE STUPID – how I would like to rewind and be “more something” (fill in the blank).

Next step is… I am in the ICU at BJC hospital, and I don’t remember anything of the fall, as is well known by all survivors of concussions.

Photo Alma M.

Slowly, it is hard to gather all of these facts, I learn that I have: a broken clavicle, blood in my brain and in my arm, some kind of crack in my skull, and in my jaw, an ear that needs sewing to prevent “cauliflower ear” – and facial, hand and knee bleeding – and…  I hear something very subtle like some faint breathing in my right ear, specially in a quiet environment. And most likely a coccyx that has some damage.

Magyarul: vagy irok, vagy sirok (either I write, or I cry).
OR
Being K.O. is not O.K.

This note was produced after many much valued friends asked me how I was doing. It is inserted here, even though it is only after being home that I realized that communication was going to require many more skills than in normal times.
First I apologize for any impatience on my part. I did what I could.

In the middle of a struggle, one is generally unable to speak, making any kind of statement is impossible.

Repeatedly I am asked how I am doing (“ça va?” in French, “hogy vagy?” in Hungarian).
In 2008 I had to placate someone who kept asking how I was doing (again, “ça va?” in French)… and ended up screaming “No, it is not going well!” (“ça va pas!”).

When you are going from moment to moment, if you are going at all, the concepts of “pain, progress, healing…” are absolutely irrelevant.
At those times, you know nothing

More importantly, one may end up being unpleasant to the outside world because one is still trying to create a link to some kind of self.
It is impossible to speak without a well established subject. That’s why one shouts.  One is asked something impossible: to speak means affirming one’s ”I,” one’s identity.

For those friends who have many questions to ask, instead:  please listen to what it is the only person is going through – only silence and time will allow for the reality of that moment to appear. Cervantes said it this way: Give time to time.

“A long and slow convalescence” means there’s no need to keep asking questions. Presence is 200% of the gift you can provide; as I often say:
                           presence is your infinitely precious present (or gift)!

More succinctly, in the context of pain: BEING IS NOT SPEAKING
(OR ONE IS ONLY PLAYING WORD-GAMES & IGNORING THE COMPLEXITY OF REALITY).

OR
Tout ce qui n’est pas cri est trivial.
The poverty of language; if I don’t scream, I am using platitudes.
The French writer, Antonin Artaud, addressed all of this throughout his life.

Your can only protect yourself that much, but it is clear that I would not be here without a helmet.

In Robert Frost’s footsteps (“Thinking isn’t agreeing or disagreeing. That’s voting.“), I would add that whether one is doing well or not is not the way to ask questions, if one wants to ask the important questions.

Nota Bene: Pain has nothing to teach. There is no “teaching moment” in it. And, possibly everything is only valid until the text time you encounter (the same!) difficulty again.

Words, these words too, hide so much more than they reveal.

In an effort to unmask this, I did this long interview for a Bolivian paper: The Void and its Pressure.

Just a few excerpts from the beginning:

  • At their core, words are frozen experience and as such monuments, they function as mere reference points. No matter what others may say, we remain bound by our life’s path.
  • The topic at hand is oblivion
  • I should mention that I belong to Abraham’s ancient iconoclastic tradition and that this is only one way to react to our boundless arrogance.
  • Civilization as a whole produces a deafening disturbance we remain unconscious of until the end of our lives.
  • During encounters with death or, in less tragic ways, when we feel dwarfed by our surroundings, radical changes can take place…

More importantly, the School of No Media (I am its Unlearning Specialist), is my direct response to the arbitrary concepts/words we surround ourselves with – something I would not have been privy to, had I not been without words in I.C.U. for those “hellish” three weeks.

Yes, beyond stuff, culture & media, words & concepts…
Can we get there? Very easy: the next car accident will get you there fast.
Or, you may simply sense a regular form of vertigo as you ponder the implications behind what the Laniakea or the Eukaryota imply for us. More information on the School of No Media site.

What I represent. © Marton 2015

Visitors, well-wishers, friends (so many disappear… ) overall do not know how to be with a sick person. It seems as if THEY would like to be taken care of because THEY cannot handle the stress of being with you…

I remember a friend from those days having a hard time accepting that “No, things were not better” and this was not changing fast enough… but a sick person cannot be teaching a healthy person how to be (with a sick person).

From my point of view, besides the good tips below,

just BE with the other person, NO need to fill in the gaps.
Presence is 100 percent of life.

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An excerpt from the NYTimes article by Bruce Feiler:

The NEVERs:

1. WHAT CAN I DO TO HELP? Most patients I know grow to hate this ubiquitous, if heartfelt question because it puts the burden back on them.

2. MY THOUGHTS AND PRAYERS ARE WITH YOU. In my experience, some people think about you, which is nice.

3. DID YOU TRY THAT MANGO COLONIC I RECOMMENDED? I was stunned by the number of friends and strangers alike who inundated me with tips for miracle tonics.

4. EVERYTHING WILL BE O.K. Unsure what to say, many well-wishers fall back on chirpy feel-goodisms.

5. HOW ARE WE TODAY? Every adult patient I know complains about being infantilized.

6. YOU LOOK GREAT. Nice try, but patients can see right through this chestnut.